Privacy, Terms & Safety
Privacy, terms and safety
How we handle your information, the limits of our services, and how to raise a concern.
Who we are and how to contact us
Thriving Epilepsy Awareness (TEA) is responsible for the personal information collected through this website. For privacy questions or to use your data rights, email thrivingepilepsyawareness.ngo@gmail.com (subject “Privacy”), call 0723 319 593, or use the contact form and choose “Privacy or data request”.
- We collect only what we need for a clear purpose.
- We ask for your consent before processing location, health-related information (such as medication and appointment schedules), voice input or contact details.
- We never ask for national ID numbers, full medical histories or diagnoses on this website.
- We never sell your information.
What we collect and why
| Feature | What we collect | Why | How long we keep it |
|---|---|---|---|
| Contact & partnership forms | Name, email or phone, and your message | To reply to you | Up to 24 months, then deleted |
| Volunteer form | Name, phone or email, area, interests and anything you choose to tell us | To arrange volunteering | Up to 24 months, then deleted |
| Reminders | Mobile number, reminder times or dates, channel choice, optional label, consent dates and a log of messages sent | To send the reminders you asked for | Until you delete them. Past appointments are removed 30 days after the date; message logs after 90 days; unverified sign-ups after 24 hours; opted-out numbers after 30 days |
| AI assistant | The text you type or send | To reply to your question | Not stored. Messages are processed to create a reply and then discarded. If you choose to share a question anonymously, its text (with numbers and emails removed) is kept for 90 days |
| Event registration | Name, phone or email and number attending | To manage the event and contact you about it | 6 months after the event, then deleted |
| Voice input | Your speech, converted to text by your browser | So you can speak instead of typing | TEA never receives or stores audio |
| Location | Your approximate position, only if you allow it | To show nearby facilities | Directory: stays in your browser. Assistant: sent with one question only and not stored |
| Admin audit log | Staff account actions and IP addresses | To protect the data we hold | 12 months |
The AI assistant, voice and location
- The assistant is automated. No member of staff reads conversations, and they are not saved.
- Voice input uses your browser’s speech recognition. In some browsers (for example Google Chrome), your audio is sent to the browser company to turn it into text, under that company’s privacy policy. TEA never receives the audio — only the text you review and choose to send.
- Location is only used if you allow it after we explain why. You can always type a town or area instead.
Reminders by SMS and WhatsApp
- We treat your schedule as sensitive health information. Your phone number and labels are encrypted in our database.
- We record your consent, and the time you gave it, before sending any reminder. WhatsApp reminders need a separate consent.
- To deliver messages we share your phone number and the message text with our SMS provider and, if you choose WhatsApp, with Meta (WhatsApp). They process it under their own terms.
- Messages are neutral and never include dosing advice. Your label is only included if you choose.
- Reply STOP, or use the manage page, to stop all messages immediately. You can delete your number and all reminders at any time.
Your rights
Under the Kenya Data Protection Act, 2019, you can ask to see the information we hold about you, correct it, delete it, object to its use, or withdraw your consent at any time. Contact us using the details above. If you are not satisfied with our response, you can complain to the Office of the Data Protection Commissioner (ODPC).
Privacy or data requestHow we protect information
The website uses HTTPS. Access to personal information is limited to authorised TEA staff, with separate roles for content editors and administrators, and staff access is logged. Forms are protected against spam and common attacks.
Children
Our forms and reminders are intended for adults, or for parents and guardians acting for a child. We never publish identifiable information, stories or photos of children without informed consent from a parent or guardian.
Medical disclaimer
- Information on this website, including from the assistant, is general information only. It is not a diagnosis, prescription or medical advice for you.
- Never start, stop or change medicine because of something you read here. Speak to a licensed clinician or pharmacist.
- TEA is not a 24/7 helpline or emergency service. In an emergency, call 999 or 112, or go to the nearest hospital.
- Facility information may change. Unless marked as verified, it has not been confirmed by TEA. Always call ahead.
- Reminders are a convenience and may be delayed or fail. Do not rely on them as your only reminder.
Terms of use
- You may use and share the information on this website for personal, educational and non-commercial purposes, with credit to Thriving Epilepsy Awareness.
- Please do not misuse the website, forms, assistant or reminders, or try to access information that is not yours.
- We work to keep information accurate and up to date, but we cannot guarantee that it is always complete or current.
- Links to other websites are provided for convenience. We are not responsible for their content.
Safeguarding and reporting a concern
If you are worried about the safety or welfare of a child or vulnerable adult in connection with TEA’s work, contact us by phone on 0723 319 593 or email thrivingepilepsyawareness.ngo@gmail.com (subject “Safeguarding”), or use the contact form and choose “Safeguarding concern”. If someone is in immediate danger, call 999 or 112. For children, you can also call the national child helpline, 116.
Safeguarding concernLast updated: 6 November 2026